Sue has consistently challenged society norms about access, expectations and parenting a child with a disability.
A resourceful and creative thinker, Sue has been a trailblazer for other families and generously shares her knowledge along the way.
Many of her tips are captured in the book 'Waising Miss Chloe', launched in 2014 by the Federal Minister for Social Services. Home Care Experts by Calvary is pleased to have joined Sue and Chloe on their journey.
My life as Chloe’s mother has opened doors to places I would never have had access to and allowed me to be involved with amazing people.
I wrote the book "Waising Miss Chloe" to reassure parents of disabled children that your life does not have to stop or drastically change because you have a baby with Down syndrome. In fact I am a better person because of it and had amazing experiences.
I believe it is our duty as parents to teach and enable all our children to become useful, independent adults.
We often find ourselves 'over caring' for a child with a disability but in fact we have to do less so they can survive and thrive whether we are there or not.
Dream big for your child but take small steps.
From the moment she was born I wanted to make sure that Chloe could be independent and had more choices in her life.
Teaching kids with a disability is the same as mainstream children, there are just more steps in between.
Each year we focus on developing new life skills - from cooking to using an ATM. Chloe works, catches public transport and prepares the family dinner one night a week. Chloe is not unusual, she just hasn't been given opportunities.
See the person not the disability.
Chloe is a person who has Down syndrome. She is not a Down syndrome person. A simple but very powerful distinction.
It is not a sign of failure to reach out for help, it is an indication of wisdom.
Don’t wait for a crisis before you link into community services. The Home Care Experts support us with weekly respite care. Initially this gave me space and permission to have 'Sue time'. Now it is all about providing educational opportunities and life skilling for Chloe.
Our Support Workers provide the family with different skills, experiences and perspectives so Chloe is not just 'taught by mum'. Sue is a regular blogger at suedymond.blogspot.com.au
If I am no good for me, I am no good for anyone.
It is important for carers to remember to look after themselves and to schedule in regular breaks. Caring for a loved one with a disability isn’t for sprinters. It is a true marathon. We really need to pace ourselves and keep ourselves as strong as we can. Physically, mentally, emotionally and spiritually.
If it is to be, it is up to me.
This is one of my mantras. I can’t sit around and wait for things to happen. It has to start with me. We need to be a part of the change we want.
I believe that everyone has dreams, it is just a matter of finding them.
If you verbalise your dreams you will find others with the same dreams and drive. I have just set up a not-for-profit organisation called 'iDareU'. It is designed to inspire and empower people with a disability to follow their dreams and step into the light and shine.
If you would like to learn more about Home Care Experts by Calvary and our services, please call one of our friendly Care Experts on 1300 66 00 22.